Very excited to announce I’m invited to present our community and
project at WHAM, in Dublin hosted withing the bigger IHC2019.com
congress. I’m invited as Spanish Cluster headache Representative
connected to AEMICE, Associación Española de Migrainia y Cefalea.
A lot of headache associations are invited here to discuss the future
of headaches and present the projects we are all working on separately.
My presentation about “why we should motivate patients to keep a diary and collect data” will be supported by work we have done with nobism, OpenHumans and Ubiqum
Key point will be:
We all want the best for our patients we represent
Nobody really knows what best
We need big data
Patients are the only ones capable of collecting big data
and graphics to show what real time data can mean to our community,
based on data collected with nobism, stored on Openhumans and analyzed
I will see if I get the option to record the presentation and add it to our YouTube channel for you to see.
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