I’m off today to go to Brussels and to attend the Cluster headache Awareness day 2019 in Brussels, organized bij the European Headache & Migraine Alliance
The Cluster Awareness day is Thursday 21th of March. The day before we will have a meeting in the European Parlaiment.
I’f I’m back I will try to give a resume about all that I’ve seen and heard.
My goal is to get our project known and show Europe we can do more than talk as patients and I hope to stimulate other European and National Headhache groups to join the initiative.
Collecting data is the way to find out what the effectiveness is of our treatments. This data can ONLY be collected by us as patients.
Only by all working together and by having our own data, we can create a change.