10 steps to change healthcare

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10 STEPS TO CHANGE HEALTHCARE

 

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The nobism project is setup to compare efficiency of treatments patients do. What is the best treatments for every patient individual? Why do some respond good to treatments and others don’t? There are many questions and maybe even more answers.

To find the best treatment for every patient, we should know more about these individual patients. The data one patient collects, could show the road to others to get better. The data of a 100.000 patients working together, could change Healthcare.

 

 

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The smart patient diary of nobism is a first step of many to give patients a tool to change Healthcare. All data is stored ONLY on the device of the user[learn_more caption=”Data Backup”] Data collected with the smart patient diary is only stored on your phone. There is no backup. In the future we hope to support backup facilities.[/learn_more] It can only be shared by eMail. This makes that patients get the FREEDOM to collect their data, own it and share it with any group that helps them finding solutions.

For Patient-Leaders and -Advocates this means they can actualy work on making healthcare better by showing the trends found in the data, this is one step better than using patient experiences.

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If 2 Patients with data about their disease progression would share this with each other, together they would know more.

If a 100.000 patients have their data and share it together, they could change Healthcare.

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Download the smart Patient diary APP for free

   

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Patients already Experiment

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Patients all have their unique journey, as they are all unique people. Patients try different medicines, go to therapy or try other alternative solutions. If it works they are happy, if it doesn’t patients go on searching for other solutions or “accept” and try to go on living.

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Patients do one big experiment while they use the advice of specialists and experiences of fellow patients to navigate. Some patients only use regular treatments, others try to solve their problem with alternatives, therapies, vitamins or food & Life changes.

Patients together try every treatment available, medicine, therapy, vitamins, minerals food, alternative & lifestyle changes.

 

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Keep a diary

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Individual experiments are the base of experiences patients have right now. But experiences change over time by emotions, memory or personal circumstances. These are not very useful to change healthcare as it is now.

By keeping a diary, patients collect unique information about their daily lives and all they do to feel better.

 

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These data could help patients to get better individual understanding and IF they work together, generate trends and insights about symptoms & treatment combinations. Searching for symptom changes could show the road to better understanding and individual treatment plans.

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Work together

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Big changes in history are always done with the power of the people. People worked together to be able to vote, rights for woman, freedom of religion and speech. People started workers unions in the early ages of the industrial revolution, to get more rights for the working class. All done by individuals starting to work together and create a movement.

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Now its time to change Healthcare. By working together patients can create the changes that they need.

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Create data sharing

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As long as patients have their data individual, they have their knowledge individual. By sharing data with fellow patients, groups, specialists or research, they create common knowledge that they can use to support their goals.

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In nobism point of view, sharing data is an individual decision and right. If you share, you should be able to decide what and with whom you share. And it should be anonymous when necessary, just because it is your data.

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Create a marketplace and income

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Having chronic conditions makes that patients can collect valuable data. Why not look at these data as a hotelroom and nobism as booking.com. We can “rent-out” our data to create an income and a share to support the network. Most patients lost the ability to work and with it, the option of a brighter future.

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The different diagnoses patients have, also bring in extra costs for treatments, operations and other necessaries needed to live as a patient. So they now loose on 2 sides.

Nobism will build a marketplace were patients can trade their data and generate income. Only with income patients can create an even playfield between them and industry. If they stay non-profit, like most patient driven initiatives, they always need to hold out their hand to get financial support.

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Support Patient Leaders

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Within every patient group there are active people. Patients should support the ones that want to take the lead and support data so they can do their work. Patient leaders will keep groups together, like they do already on Social media. They know the people in the group, can be a central point for questions and could be the voice to the rest of the network.

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Patient Leaders should also have the ability to connect to other groups with common interests. These groups could be from the same region or culture and with groups on the other side of the world, we are all in it for the same. Even working together based in treatment instead of diagnose, could be an interesting option.

When new information or treatments are available, they can use their network to spread the message worldwide.

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Find trends of best treatments

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Together patients have all the knowledge and tools needed to start own research.

They have the unlimited access to technical solutions, specialists,, external databases, software and Artificial intelligence. This will help them to find their own trends for best treatments.

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Nobism knows a “trend” isn’t the same as “scientific proof”, but it gives direction. If trends get validated by scientific proof, patients can legally use them as treatments and specialists can subscribe them.

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Support Patient Advocates

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Patient advocates can talk at the highest levels to support our case. Patients should supply them with their data, trends and commission to back them up and support their goals.

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Representatives at the highest levels can lobby government, industry and research in our favour. They can use their power to steer research and change legislations that are blocking or delaying our progress.

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Steer research with trends

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Having data and trends will give patients the option to steer research in their direction, choosing the ones that are more interesting to them than others. Now they can only participate in the ones that are chosen already. This is an important problem in Healthcare

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Having patients at the decisions making of were research goes, means patients can change the direction of were Healthcare goes.

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Validate own treatments

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If patients can steer research they can validate the treatments that are in their best interest.

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While industry looks at the most profitable treatments to patent, Patients interest is to have the cheapest ones.
While industry looks for more profit every year, patients are interested in spending a bit less every year.

These 2 basic differences will make patients choose a different path and change healthcare step by step.

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I know I’m just a patient like most of my readers, but I know we can change healthcare. I know its a bold idea and many say its impossible, but a NO I have already.

Its not a change I can do myself. I can only take the initiative and pull the car for a while. Its something patients have to do together. 10 steps to explain how patients could change healthcare and how they could take initiative. From there its up to you to join and help.

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10 Steps to change Healthcare

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A patient driven network
To change the direction
of were healthcare goes

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step 1 – Patients already experiment

Patients all have their unique journey, as they are all unique people. Patients try different medicines, go to therapy or try other alternative solutions. If it works they are happy, if it doesn’t patients go on searching for other solutions or “accept” and try to go on living.

Patients do one big experiment and they use the advice of specialists and experiences of fellow patients to navigate. Some patients only use regular treatments, others try to solve their problem with alternatives, therapies, vitamins or food & Life changes.

Patients together try every treatment available, medicine, therapy, vitamins, minerals food, alternative & lifestyle changes.

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Step 2 Keep a diary

These individual experiments are the base of the “Patient experience” patients have right now. But “experiences” change over time by emotions, memory or personal circumstances. These are not very useful to change healthcare as it is now.

Patients should keep a diary and collect the points in time that created their experiences. these “digital point in time” don’t change by time, emotion, memory or circumstances and can be used to get a better understanding of individual disease progression.

Every individual will own and control their data to use it in their best interests.

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Step 3Work together

Big changes in history are always done with the power of the people. People worked together to be able to vote, rights for woman, freedom of religion and speech. People started workers unions in the early ages of the industrial revolution, to get more rights for the working class. All done by individuals starting to work together and create a movement.

Now its time to change Healthcare. By working together patients can create the changes that they need.

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Step 4Create data-sharing

As long as patients have their data individual, they have their knowledge individual. By sharing data with fellow patients, groups, specialists or research, they create common knowledge that they can use to support their goals.

To do so patients should break their fear of sharing data. The fear that it could be used against them, is terrifying. But they already share on Facebook, Twitter, Instagram and other social platforms. Others use “free to use” apps.
Almost all off these make their money selling your data.

In nobism point of view, sharing data is an individual decision and right. If you share, you should be able to decide what and with whom you share. And it should be anonymous when necessary, just because it is your data.

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Step 5Create a marketplace and income

Having chronic conditions makes that patients can collect valuable data. Why not look at these data as a room and nobism as booking.com. We can rent-out our data to create an income and a share to support the network. Most patients lost the ability to work and with it, the option of a brighter future. The conditions patients have also brings in extra costs for treatments, operations and other necessary things needed to live as a patient. So they now loose on 2 sides.

Nobism will build a marketplace were patients can trade their data and generate income. Only with income patients can create an even playfield between them and industry. If they stay non-profit, like most patient driven initiatives, they always need to hold out their hand to get financial support.

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Step 6Support Patient Leaders

Within every patient group there are active people. Patients should support the ones that want to take the lead and support data so they can do their work. Patient leaders will keep groups together, like they do already on Social media. They know the people in the group, can be a central point for questions and could be the voice to the rest of the network.

Patient Leaders should also have the ability to connect to other groups with common interests. These groups could be from the same region or culture and with groups on the other side of the world, we are all in it for the same.

When new information or treatments are available, they can use their network to spread the message worldwide.

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Step 7Find trends of best treatments

Together patients have all the knowledge needed and the world changed a lot in the last 10 years.
Patients now have the unlimited access to technical solutions, external databases, software and Artificial intelligence. This will help them to find their own trends for best treatments.

Nobism  knows a “trend” isn’t the same as “scientific proof”, but it gives direction. If trends get validated by scientific proof, patients can legally use them as treatments and specialists can subscribe them.

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Step 8Support Patient Advocates

Patient advocates can talk at the highest levels to support our case. Patients should supply them with their data, trends and commission to back them up and support their goals.

Representatives at the highest levels can lobby government, industry and research in our favour. They can use their power to steer research and change legislations that are blocking or delaying our progress.

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Step 9Steer research with trends

Having data and trends will give patients the option to steer research in their direction, choosing the ones that are more interesting to them than others. Now they can only participate in the ones that are chosen already. This is an important problem in Healthcare

Having patients at the decisions making of were research goes, means patients can change the direction of were Healthcare goes.

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Step 10Validated our own treatments

If patients can steer research they can validate the treatments that are in their best interest.

While industry looks at the most profitable treatments to patent, Patients interest is to have the cheapest ones.
While industry looks for more profit every year, patients are interested in spending a bit less every year.

These 2 basic differences will make patients choose a different path and change healthcare step by step.

[/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row admin_label=”Row” _builder_version=”3.0.47″ background_size=”initial” background_position=”top_left” background_repeat=”repeat”][et_pb_column type=”1_3″ _builder_version=”3.0.47″ parallax=”off” parallax_method=”on”][et_pb_contact_form email=”info@nobism.com” title=”More information about collecting data together” success_message=”Your message is send and we will respond as soon as possible.” submit_button_text=”Ask” admin_label=”Contact Form” module_id=”et_pb_contact_form_1″ _builder_version=”3.0.51″][et_pb_contact_field field_id=”Name” field_title=”Name” _builder_version=”3.0.47″][/et_pb_contact_field][et_pb_contact_field field_id=”Email” field_title=”Email Address” field_type=”email” _builder_version=”3.0.47″][/et_pb_contact_field][et_pb_contact_field field_id=”Message” field_title=”Message” field_type=”text” fullwidth_field=”on” _builder_version=”3.0.47″][/et_pb_contact_field][/et_pb_contact_form][/et_pb_column][et_pb_column type=”2_3″ _builder_version=”3.0.47″ parallax=”off” parallax_method=”on”][et_pb_text admin_label=”Text” _builder_version=”3.0.51″ custom_padding=”|50px||50px”]

This project is open minded, patient driven and will give patients the option to compare and revalidate all their existing and new treatments.

If you represent a patient group looking for ways to collect data together, please feel free to contact us. Nobism has a data scientist connected or you can do your own analisys within your own group.

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